Useful Information

Paying for Care – Government website contains useful information on facts, figures and advice on personal help for your individual situation. http://www.payingforcare.org/

The National Autistic Society. Has been working to help support and research autism in its many forms for over 50 years. https://www.autism.org.uk/

Age UK – Age UK is the country’s largest charity dedicated to helping everyone make the most of later life. They help many millions of people every year, providing advice and support for older people when required.   http://www.ageuk.org.uk/

Alzheimer’s Society – There are many types of dementia and it can happen to anyone; they do not have to be old and there is no cure. The number of people with dementia in the UK will be 1 million by 2021. They don’t believe life ends when dementia begins. https://www.alzheimers.org.uk

NHS Advice on Direct Payments and Personal Budgets: Direct payments and personal budgets are offered by your local authority to give you more flexibility over how your care and support is arranged and provided. They are given to both people with care and support needs, and also to carers http://www.nhs.uk/Conditions/social-care-and-support-guide/Pages/direct-payments-personal-budgets.aspx  Personal Health Budgets (PHBs)are a growing area and these too are covered.

Dignity in Care – Led by the National Dignity Council, Dignity Champions form part of a nationwide network of over 60,000 individuals and organisations who work to put dignity and respect at the heart of UK care services to enable a positive experience of care. http://www.dignityincare.org.uk/

Your local authority should also have advice services, see their individual websites for details and telephone numbers. Local libraries have lists of charities and groups that may be able to help you.

Many charities and their websites focus on a particular area of need, examples are below

The Stroke Association is the UK’s leading stroke charity changing the world for people affected by stroke. More people than ever are benefitting from cutting-edge treatments and making full recoveries. And more people now understand the need to seek emergency treatment for stroke. We’ve been at the heart of every one of these developments, championing the cause of stroke and stroke survivors. –  https://www.stroke.org.uk/

Parkinson’s Charity – We’re the Parkinson’s charity that drives better care, treatments and quality of life. Together we can bring forward the day when no one fears Parkinson’s. We provide expert information on every aspect of Parkinson’s so that people affected by the condition can stay in control of their lives –  https://www.parkinsons.org.uk/

Parkinson’s Charity – We’re the Parkinson’s charity that drives better care, treatments and quality of life. Together we can bring forward the day when no one fears Parkinson’s. We provide expert information on every aspect of Parkinson’s so that people affected by the condition can stay in control of their lives –  https://www.parkinsons.org.uk/

Diabetes UK is the leading charity that cares for, connects with and campaigns on behalf of every person affected by or at risk of diabetes. They provide information, help and peer support, so people with diabetes can manage their condition effectively. –  https://www.diabetes.org.uk/

MS Society –a community of people living with MS, scientists, campaigners, volunteers and fundraisers. They understand what life’s like with MS, and what support that you may need and how to discover it. https://www.mssociety.org.uk/

Care Associations can be an invaluable source for local advice and guidance, in the area around Bristol, https://www.careandsupportwest.com/

United Kingdom Homecare Association (UKHCA) – As a member-led professional association, the UKHCA mission is to promote high quality, sustainable care services so that people can continue to live at home and be parts of their local community http://www.ukhca.co.uk/

Care Quality Commission – CQC is the independent regulator of health and adult social care in England. http://www.cqc.org.uk

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